The Living With Gastroparesis blog just posted some interesting survey data about Gastroparesis which does include information about probiotic usage w/ Gastroparesis. Of 46 people who responded as taking probiotics, 25 reported mild to significant improvements of their Gastroparesis symptoms, which is actually impressive as I was not thinking they would have that large of an effect. It is important to note that the majority of positives results, were on the mild side, but some people did respond well to probiotics.
If you’re not aware, Gastroparesis is paralysis of the stomach. Basically the stomach no longer churns properly or doesn’t do it as often as it should. There can be variations on why this is, such as nerve damage, muscle damage or the pyloric sphincter does not relax. Basically, food does not empty from the stomach like it should. The symptoms essentially are like having a stomach flu 24/7. It is very difficult to eat food like a normal person and it can be very debilitating. The causes range from viral infection to diabetes to gastric surgeries.
Probiotics are healthy bacteria that live in the lower gut. These bacteria help digest food & aid in preventing infection. They do not usually have a direct impact on the stomach, but keeping your lower gut healthy, may prove beneficial. This would be especially true if you’re dealing with a wonky upper digestive tract.
Here are a few things I’d suggest trying, possibly before trying probiotics. But there is nothing saying that you can’t try probiotics at the same time.
1. Iberogast – This is an herbal pro-kinetic, it helps the stomach and digestive tract move again. I would say this should be #1 on everyone’s list, including doctors!
2. B12 Vitamins – There is a theory that gastroparesis could be caused by damage to the vagus nerve. B12 is VERY important in the recovery of damage to nerves. Given that someone dealing with gastroparesis might not have very good absorption, talk to your doctor and get a B12 deficiency test or ask to get B12 injections. Not only could this be helpful for nerve health, but could also improve your energy levels as well.
If you want to try oral supplementation, you could try Nature’s Bounty Vitamin B-Complex which has a small B-complex dosage that would probably be easier to digest. I’d also strongly recommend a Methylcobalamin B-12 supplement, the one I stand by is NSI’s Methylcobalamin 500mcg capsules. They do not have any fake sugars like most methyl-b12 supplements. Methyl-B12 is B12 in a form easily absorbed by the body.
3. Digestive Enzymes – Enzymes breakdown your food, I’ve read some reports that they are not effective with gastroparesis, but I would not write them off. Anything you can do to help breakdown your food before your stomach tries to go to work on it can help! You could try CompleteGest Digestive Enzymes or Now Foods Plant Enzymes.
4. Probiotics – While they don’t directly affect the stomach, having a healthy lower digestive tract could help keep things in sync and hopefully reduce symptoms. I’d suggest Align Digestive Care Probiotic which has a low probiotic count (1 Billion CFUs), you can then double or triple it if you feel the need for a higher dosage. Starting small is probably important.
Don’t give up hope. Many people have recovered from Gastroparesis. I myself dealt with some very tough symptoms for 3 months during the summer of 2006. I know for some they have dealt with it much longer than I ever did. As far as I know my cure was a steady diet of Rice Krispie Treats & Nature’s Bounty Vitamin B-Complex. But perhaps it was also the Zelnorm or the Prozac or a bunch of the other stuff I was trying at the time. The B-Complex though seemed to be night and day after I started taking it. I wish I could guarantee that would be the case for you.
Even for those who are not helped by these suggestions, there are still options like the Enterra Pacemaker or hopefully Tranzyme will see the light of day. Don’t give up hope!
If you’ve used a probiotic and have or have not found success, please post the brand/type you use.
Thanks for posting this, Gabriel! Great suggestions. I’ve been on Align for a long time, but I think I’m going to try the probiotic you recommend as I recently noticed that Align has a lot of additives. Thanks for sharing the info!
Thanks for the comment!
I am pretty firm believer in starting small with probiotics and it’s pretty hard to find one with a low CFU amount, which is why I recommend Primadophilus Junior. Align seems to be really costly and actually has a very low probiotic colony forming unit count of 1 billion. I actually wouldn’t mind finding a decent 1 Billion CFU probiotic pill that I could double/triple as I ramp up, but I don’t want to pay almost $1 per pill for it :P! You are right that there seems to be additives in Align like “milk protein”, Sugar, “Titanium Dioxide”(white food coloring), “Blue 1” food coloring… Why would they put food coloring in a probiotic?
I once found some ‘granola breakfast’ bars from Kellogg that supposedly had probiotics in them. They were also loaded with sugar, artificial colors & flavors galore, plus they didn’t taste very good.
My girlfriend has GP and it flares up alot. She eats the right food but still has a LOT of trouble with this.We both take all natural probiotics from Garden Of life. High cfu count and 100% Organic. And very effective for healthy gut. She’s getting Garden Of Life Raw Meal Replacement to keep heathy. It’s all gluten free and vegan. Low fiber makes it a perfect meal option for people suffering from this condition.
Can anyone tell me if there are benefits for gasteroparisis if you take PREbiotics? Curious. Also I can’t seem to handle the probiotics I’ve tried so far. I will try the junior one mentioned above. Thanks for the tips!!!
I have gastrperesis and I have just started to take align and hopefully it will work for me , but I wanted to let all of you know that I take a tablespoon of ”braggs” organic apple cider vinegar before each meal and it helps me tons!!! Please try it!!!
Thank you i will try that. I’m new to this site, i just found out my diagnosis after 8 years. Thank goodness for these websites. I hope your doung well
This does not work if you have hiatal hernia as well as acid reflux. I have tried the capsules and the Braggs.
I have a hiatal hernia that causes reflux and am diagnosed with resulting esophagitis. Bragg’s in water relieves my symptoms when they flare. Homemade raw milk kefir at night knocks down night time symptoms.
Hi,
I suffer from Gastrparesis, hiatal hernia & acid reflux- not the best combo :-(
Will try Dr. Tobias‘ Pre- & Probiotics.
I also drink ACP/ Braggs in 1 gallon of alkaline water.
Any other suggestion? Meal replacement shakes are better to digest.
Thank you!
@sarah
Thanks for the comment.
I have tried Braggs’ unfiltered vinegar before. It can give some people heartburn, but that is a good suggestion to try. Supposedly it’s good for a lot of things involving digestion.
I’ll have to put a post up about it :)!
I am battling digestion issues right now and boy it had me quite depressed. Basically on Ensure for the last 4 months. Thank you for all the tips on this blog. I hope they work. I really want to eat.
I appreciate your blog and helpful info for those with gastroparesis – I’ve been suffering with it for almost a year. I was on Reglan, which completely relieved my symptoms, but I developed multiple side effects – severe anxiety & depression. After some research, I found that domperidone is a very effective druge with few side effects, but the FDA hasn’t approved it in the US – it’s used in Canada & Europe, everywhere but here. After more research, I found two clinical trials – doctors who are able to prescribe domperidone through the compassionate guidelines of clinical trials. I have an appointment at the one in Pittsburgh, PA (the other is in Urbana, IL), and I’m anxious to get a medication that works! If anyone with gastroparesis wants more info, check out the clinical trials on this website: http://www.digestivedistress.com/main/page.php?page_id=30
My Dr prescribed it for me and I bought it online from the North Pacific Islands and didn’t even need a prescription. I got off of it now, but you have to get an EKG every 3 months.
@Nicole, I hope they will help you out. I wish you the best of luck with recovery.
@Denise, That is a helpful link. Domperidone definitely needs better availability in the USA. I don’t know why so many doctors are afraid of it, yet freely prescribe Reglan even when they know of it’s possible dangers.
I’ve been diagnosed with gastroparesis, but the doctors do not seem too keen on finding the cause of it. It’s more of a feeling of “We did our job, now go away” that I get from them.
I’ve been told to avoid pills — I’ll try anything, and the B12, even if it doesn’t work, shouldn’t hurt, right? What dosage and frequency was followed in your case?
@Dave
Ahh that’s too bad about the diagnosis & the doctors. There really needs to be more compassion and investigation into the causes of GP. Have they done upper and lower endoscopies? Have they done a gastric empty study? You might, try to find different doctors. I know how tough it can be though with that, especially in the USA there is a very long wait.
As far as pills, you can crush them up and mix them with soft foods like apple sauce. My diet was apple sauce & rice krispie treats for awhile. I’d mix the B vitamins in with the apple sauce after crushing it. I used “Nature’s Bounty High Potency Time-Released B-Vitamin Complex w/ Vitamin C”, really long name. It comes in green bottles, you might be able to find it at your local pharmacy. Here’s a pic from drugstore.com. You might also check out NSI Methyl-B12, which is the only Methyl-B12 supplement I’ve found that doesn’t have a bunch of fake stuff in it. You can twist open the gelatin pill and dump the powder on whatever you want to eat it with. Dosage would just be 1-pill of each per day.
I would strongly recommend trying Iberogast as well.
How long have you been diagnosed and dealing with GP? GP can be temporary, but can take months to resolve in some cases.
I wish you the best!
@Gabriel,
They did an upper endoscopy, and followed it immediately with a GES. When they confirmed delayed emptying, they stamped the diagnosis of GP on me, gave me the diet advice, told me to take reglan, and said I might get better, then ‘bye’.
I’ve had acute symptoms since December 17th, but I suspect things started around Nov 28th, when I had nausea and dumping in the very early morning. I’m usually the opposite — constipation has been a battle all my life. I’m basically just past the two month mark with it right now.
Most of the methyl-b I have nearby me seems to be sublinguals and lozenges. Do those absorb as well as swallowed forms?
@Dave
You can try the sub-lingual tablets out or the liquids as well. In some cases those may work better as they should be absorbed through the membranes of the tongue. Although some think that the structure of B12 is too large to make it in through the tongue. B-12 has to bind to something called “intrinsic factor” in your stomach to be absorbed in the intestine. If you’re having stomach issues, then you may have less or no intrinsic factor which would prevent you from absorbing B-12.A lot of complexes have Cyanocobalamin as their B-12 which your body has to break down into Methylcobalamin to be absorbed. Ultimately there are prescription B-12 injections/nasal sprays you can get that will allow you to absorb B-12 if you can take it internally or via sub-lingual methods. Helpful if you don’t have a wonky doctor.
There are other B-Vitamins(B-6,B-3, etc..) so it’s important to probably get a B-complex as well.
Also I was taking a multivitamin from GNC, I think but I can’t remember the name of it now. Maybe try Alive! from Nature’s Way.
My issues started in late May 2006 when I got sick to my stomach, perhaps food poisoning. About a month later in late June, I woke up to very bad cramping/abdominal pain. After that the abdominal pain/cramping/dumping started happening ever two weeks, then every week, then it just turned into everyday with round the clock nausea. Symptoms started improving probably in mid to late September 2006, around the time I took the B-Vitamins.
Probably the best thing is to try to eat what you can and attempt to stay in “health”, it’s hard with GP though. Definitely keeping vitamins going would be a good idea, even if it’s a small amount. If you don’t eat and your body tries to get better GP can actually occur due to anorexia(not eating). In some cases you could be getting better and not know it if you’re not eating. Best to give it all the help you can to kickstart it back into gear.
@Gabriel,
I went with a liquid B12(methyl-b) supplement. I have the Centrum chewables and some fruit-based liquid vitamins. I’m also going for fish oil softgels — anything to help the nerves mend.
Right now I drink several Boost Plus shakes per day, and get one serving of Cup o’Noodles. It doesn’t seem to upset my stomach, luckily. That’s sort of my ‘solid food’ test for bloating, pain, and nausea.
My doc has me on reglan for the present, and I’m weaning off of it slowly. Some days are still more touchy than others, but I want to be able to tell when/if I start to feel better. I do know that I actually get real hunger pretty late into the night, complete with all kinds of interesting noises from the abdomen at night/early morning. I’m hoping those are the sweet sounds of motility. :)
You should aim to get at least 15-30 moments of sunlight daily. this is because your body will normally produce the Vitamin D the minute your skin layer is exposed to sun energy. If you normally wear sunscreen at all times, skip wearing it while you’re endeavoring to absorb the nutrient. for the reason that the chemicals in the actual sunscreen will block your body’s natural absorption connected with sunlight. Another great advantage of sunshine is that it truly is wonderful in fighting fatigue and depression. If you have medium to dark dermis, then you should try to stay out for 10 minutes more inside the sun to reap being full benefits.
Gabriel, thanks for the post! but do i have to take all 4 that you listed? i don’t know if i have Gastroparesis but every time i eat, my stomach gets so bloated and looks so full, feel very tight and uncomfortable. i don’t even have to eat big meal and my stomach just gets so big like i’m pregnant. i feel like my stomach is not digesting the food! i’ve tried Align and didn’t really seem to help.
You don’t have to take them all at one time, those are just some brands to get you started. Pick one and try to stick with it for a few weeks then see if you have any improvement.
Other things that can help with bloat are Iberogast, Digestive Enzymes, Betaine HCL, GasX or Beano.
I’ve tried all of those except for Beano. For me, they all vary in how consistently they work. I mainly take Iberogast & Digestive Enzymes to help with bloat. You might find one of them that works consistently for you. Also things like walking or doing some stretching after meals might be of benefit to help get the digestive system moving.
Thanks for all this info. I have been looking for a site like this. This gastroparesis is ROUGH>
Hi everyone. I had no idea what this was or how common it is. I will be going for a Gastric empting test soon. So im not really sure yet what’s going on. I have had no problems with my bowels just having problems with my food not digesting. It’s not a good feeling when you know your food is just sitting there. They did a Endoscopy 2 weeks ago all showed normal. I have had no other health issues so this is very strange to me. I have to say I have never felt so sad, and so frustrated. When it all started 12 weeks ago I was just thinking its just a little bug it will go away. My doctor just said it’s just a little acid reflux…here some Nexium you’ll be fine. I asked her over and over could i see a GI about what going on i have lost to much weight. So here I am months later hoping and praying to God for answers. Is anyone in this forum Gluten sensitive? After I went to my doctor with no help I decided to see a Naturopath doctor, she did this test called BIMEORIDIAN test. She said I had Gluten sensitivity. I don’t know how accurate this test really was but I went gluten free thinking this will solve all my problems. My system did really calm down not as much discomfort or sickie feeling, however I have been so afraid of feeling really sick to the point of vomiting that I have stayed gluten free for 6 weeks now. I’m not sure this was a good idea, my very small body had lost a lot of weight because of this THING we don’t know what is yet, and could very well be gastroparesis. I’m not sure if I should re introduce gluten but im thinking about it. Does anyone know if one of the symptoms with gastoparesis is constipation or the runs?? I don’t have either one of these so im confused.
Thank you all
Chrisitne
@Christine
Sorry to read about the struggle you’re having. I too was told I only had acid reflux when I initially started showing symptoms. The heartburn medications only made things worse by reducing my available stomach acid. I am sure there are some out there who have gluten sensitivity as well as GP, but maybe it’s less common. Do your symptoms go away if you abstain from gluten containing foods? If so then you may be dealing with a gluten allergy. As far as the test goes this person’s answer suggests that Biomeridian may be more of a scam than science.
http://answers.yahoo.com/question/index?qid=20081120185312AAhZDyR . The device is FDA approved but not for diagnosing food allergies. The main way that celiac disease is diagnosed these days is via biopsy through endoscopy after a period of time has passed while on a gluten free diet. However if you had an endoscopy recently I’d imagine it would have shown inflammation, so perhaps you do not have celiac disease, but you might still have a mild gluten allergy. Ultimately though, food allergies are extremely hard to track down & can come & go. Really you may be left with experimenting as your only option, by reintroducing small amounts of gluten foods back into your diet & see how it feels.
Check out Crystal Saltrelli’s website for lots of good GP info:
http://livingwithgastroparesis.com/tag/faq/
How GP affects the lower digestive tract can vary. Some people get diarrhea, constipation or both, while others have somwhat normal systems.
I personally recovered for the most part from my GP, though I still get spells of nausea, reflux. I mainly survived on rice krispie treats & vitamin B. I would strongly suggest trying to fit in nutrients & vitamins into your diet, especially the vitamin b(maybe going so far as to ask for injections). Becoming malnurished &
dehydrated will only make you feel worse. :(
You may want to look into getting some Iberogast or if you’re in a country that has it, some domperidone.
Hi Gabriel,sorry I’m late at saying thank you, so thank you for all the info. What a great help blog you have here.Truly thats what people need; to feel like there not alone or going crazy.It’s sometimes just a help to know your not alone, however I do not wish these syptoms on anyone. You gave some great advise. I just started for my very first time ever probiotics and wow already there something going on.They told me the gastric emtying test cant be done until August….but…I’m hoping for a true miricle befor then. Its strange really because I never had any bowel problems just digestive..I kept asking the doc could it be bacteria, could it be fungi, or infection in my small intestine,from bacteria..It felt like all was happening in my upper track. NOT MY STOMECH…however we know its all conected. So just yesterday I started with probiotics, today Im able to eat with feeling like my food is going to come up or iss sitting in my chest. So, today well I was out buying some fresh veggies I had my little prayer time with God thanking him and asking for his grace daily in all this crazyness. Also thankful for your blog and your heart that provides information with others who are feeling the same things. Hey Gabriel have you ever heard of Brenda Watson?
Hi Gabriel….oh my god a ton of typo mistakes. I’m the worst speller in the world. Ok, so this is Brenda Watson’s web site. http://www.brendawatson.com/digestive-conditions/ there is some pretty good articles and information but you have to search around through her web. There is a ton of video’s etc..
Chrissyt
@christine
Brenda’s website looks familiar & I’ve even used her RenewLife probiotics before, but I haven’t read any of her books. Usually I am not a big fan of buying books on fiber or cleansing, but they may be of benefit for some out there.
I have recently been diagnosed with GP, my dotors say there is nothing that can be done. I am tired of being sick, no matter what I eat i get sick and usually vomit. I have lost weight and still losing been dealing with this for about 6 months. What can I do? I have been reserching and it seems to all come down to diet which sucks everything I like I should not eat.
@Tom
Have you been prescribed any sort of motility drug like Reglan or Domperidone? Have you tried Iberogast?
Diet is a major factor for managing symptoms, though even those who manage diet can still have rather severe symptoms. Not everyone is the same & not everyone will respond to treatments in the same way. You should still try to experiment with foods to try & find something(anything) that will work. That may be applesauce, or it could be rice krispie treats or pureed soups. Even if it’s only one staple, you just need to try & find some “safe foods”. Also try to get vitamins into your diet. The crappy thing about GP is that you cannot each because you feel like crap & usually people need to eat to feel better, not eating or drinking though leads to being malnourished & dehydrated which makes GP symptoms worse. It’s probably not best to focus on what you’ve lost in the way of diet & try to focus on maintaining your health & improving your situation. If you can stop the weight loss, that will be a little victory & could be an indication you’re getting better. Not all GP is permanent, some people can recover & “acute” GP can last a year or longer in some cases. If you know the reason for why you have GP, such as diabetes, then getting that under control could resolve the GP.
You may also want to check this link out and browse Crystal’s site as she has a bunch of ideas. She’ll be releasing a book soon with recipes that work for her & her GP.
http://livingwithgastroparesis.com/nutrition-gastroparesis/
She now has an Enterra Neurostimulator, which may be an option for you eventually if your GP situation doesn’t improve over time.
Hey Tom, I really feel for you. These things take time in working towards feeling better. Gabriel is so right, “not all GP is permanent” so don’t give up or lose hope. I too just recently have been going through what you have; weight loss, getting sick way too much. However, I started doing some reading and research, and got some great tips from this site. I just started taking probiotics, this is something I had never tried before and it has already made a difference in how I’m feeling. Also, I had no clue that I may have developed some food allergies or sensitivities. I started noticing some patterns after I felt really sick. I would truly recommend keeping a food log for a bit to recognize possible food triggers. I’m going to see an allergist doctor soon to find out if I have developed any food allergies, as I have a hunch this has been a contributor. Hang in there Tom, don’t worry your weight will come back in time.
Christine
I go for my Gastric empting test July 7th. It’s a crazy thing with all the research and reading I have done now there are so many reasons I would not have this; however, I do feel like there is food sitting in my gut after I eat for too long. Does anyone have this sensation like something is sitting way back in your throat when you swallow? Also, does anyone know if there is anything else that has the same symptoms other than gastropaesis? I’m not diabetic, I’ve had no surgery, I don’t have diarrhea or am I constipated. So I’m wondering. Thanks everyone :)
@christine
It sounds almost like Globus pharyngis, “lump in the back of throat”.
http://en.wikipedia.org/wiki/Globus_pharyngis
Thanks for your reply Gabriel but the problem is, I do have food sitting in my gut that has not been digested after i eat for too long i believe. The stptoms for Globus pharyngis does not show any syptoms to do with digestion. It’s all so strange I just dont fit all the syptoms for GI, however the one sure thing that is happening is this food sitting to long and weight loss.
@Christine
It may be unrelated to your digestion issues. I too sometimes get a strong feeling of something in the back of my throat, or a tightness. Also I have a bit of a clicking if I clasp my adam’s apple & gently move it left or right, kinda weird…
Hopefully the gastric emptying scan will give you some answers.
Hi Gabriel, What B-Complex did you use? You mentioned a couple of them. Also, how did this Ibrogast make a differance for you? Is it true that not all GI is permanent? I am taking Domperidone for a few days now. I’m not happy about taking this drug. Does Ibrogast work the same?
Thank you
@Christine
I use(d) Nature’s Bounty Vitamin B-Complex, I still take it every day. Iberogast could definitely make a difference, I take it right now for indigestion. While my symptoms are much much better than they were in Summer of 2006, I still deal with chronic indigestion and mild nausea. It usually is helpful at calming my stomach when it’s upset. Domperidone is pretty safe, it’s much better to use it than something like Metoclopramide(Reglan). Iberogast works in a similar fashion, it is a prokinetic like domperidone, just developed using natural herbs. Some people it works great, others don’t respond.
Gastroparesis can resolve or symptoms can lessen overtime. It really depends somewhat on what caused it. I read some medical journal that GP can last for up to a year in cases where it’s caused by viral infection. I can’t locate that journal now so. There have been many people who have recovered from GP, so I would not go into it thinking there is no way you can recover. At the same time, it’s true that some people have it life long & very severe. Best thing is to cross your fingers and stay positive.
One more thing is marijuana is known to reduce nausea & increase appetite. If your country allows for medicinal marijuana use it might be something worth investigating.
Thank you Gabriel for the information I will try these products. I hope you don’t mind me asking, but when you did suffer from this in 2006 did you have constipation or diarrhea? The reason I’m asking is I don’t have either, I also don’t get nauseous. It’s only if I manage to get down a little more food than usual where I will have some regurgitation and of course the horrible feeling of food sitting in my gut is annoying, did you have this? However none of those other symptoms occur with me. When I went to see the GI specialist his first response to me was, I think you may have got a viral bug at some point and this will clear up on its own. Those where comforting words to hear, I hope he’s right. When you mentioned some of these viral cases can last up to a year it actually felt hopeful reading that. Felt like confirmation to what the Specialist was saying. Anyway thank you for that, you made my day on CANADA DAY here a good one!
Christine
@Christine
I dealt with very bad abdominal pain & diarrhea/spasming during that period of time. Much worse than anything I had experienced in the past & I’d been dealing with IBS for about 9 years before I had GP in 2006. Some people have bad constipation, some people don’t have lower digestive issues at all. Your symptoms sound mild, which is positive. I’d focus on nutrition(b vitamins especially), eating small & trying the Iberogast.
Happy Canuck Day ;)
Boom Boom America Day is coming up on the 4th here in the States.
Hey Gabriel Hope your 4th of July was a good one!!!!
Hey Gabriel tried the IBEROGRAST…and wow your not kidding, it really does make a differance;after not feeling well it settled things down wonderfuly. I went for my Gastric emptying test and all came back good, so the next thing they want to do is a CT scan. A friend of mine said it sounds like diverticulosis.
Christine :)
That’s great news! Glad the Iberogast helped you out. :) Also good that the scan came back. Diverticulitis is no fun, but perhaps more manageable than gastroparesis.
Hi Gabiel, do you think it’s safe to use this iberograst every day? I know it can be taken up to three times a day and there has been no reported side effect; but do you think the ingrediance over time is harmful? It’s funny I’m telling everyone I know with stomach issues about this stuff!
Iberogast should be safe to take daily. I use it almost daily myself.
Hi Gabriel,
I wanted to order some B-12 Complex vitamins. Do you know if these can be cut into two for swallowing purposes. I have trouble swallowing large pills. Thanks for all your info.
My CT scan was good. It looks as though this might have been viral that played havoc in my GI track. It’s been a long road and my system still down not feel back to normal but apparently a virus can symptoms can last for a long time have you heard of such a thing?
Anyway food is staying in much better but still having good days and bad. All in good time I sop pose .
Bless your heart and thanks again
Christen T
Sorry for the delay. Good to hear things are going better for you.
There are quite a few B12 products that are sublingual, in that you place them under your tongue. There are even liquid versions of B12 as well. Some people aren’t sure how effective the digestive tract is at absorbing B12. Your doctor might be able to prescribe B12 injections or a prescription B12 nasal spray.
Finally a site that actually has given me some hope!!! Thank you do much. I was just diagnosed with GP. I don’t throw up, my stomach doesn’t blow up. I do have some stomach pain an very bad nausea. I’ve been trying to eat a small balanced diet. I eat baby food for vegetables and protein. Canned friut, yougart, puddings. Trying not to lose to much weight. The mornings are the worst with nausea, last like 4 hrs. I even tried sleeping sitting up!! I just started with liquid vitamins, liquid b12, probiotics an just ordered Iberogast. I pray something helps!! So I’m gonna give it a shot . Ty for all the info. And I’m sure all the people that have been on websites like myself are scared to death , will all this stuff like feeding tubes, malnutrition , ER visits. This is the first positive website I’ve been on. So once again thank you :)
Hello:
I just wanted to say that I had been feeling very sick for about 8 years and never connected it with digestion ( I am Diabetic) and it just got worse. Finally I mentioned to my doctor that if I ate supper I couldn’t sleep. Right away she said Gastroparesis and gave me Domperidone which was great. After a few months it didn’t work quite so well and once I realized what the true nature of this problem was, I made some dietary changes. I figured that all the nausea was from rotting food and an over abundance of bacteria. I added liquid iodine (Lugol’s Solution) and within a couple of days the nausea was gone, which I had every day for years. What a blessing that was. Then more reading I found ( for nerve problems) Methylcobalamin, Hydoxocobalamin and Adenosylcobalamin which,also has helped. Digestive enzymes and HCL too. Also Probiotics. I also have Celiac Disease and on and on. The biggest help was,the iodine which I still take daily.
Thank you.
Dear Barbbara, I just read your story and know how you feel I have had gasteoperisis and fibromylagia for about 10 years now. Have not found anything that helps except for promethazine suppositories and just puts me to sleep. Although I am on quite a lot of other medications. The nausea is the worst it is gut wrenching with vomitting sometimes. Like having the worst flu 24/7. I am very interested in Liquid Iodine – Lugol’s solution (did not think iodine was for consumption)and where did you get this. I am desperate and will try anything. Also going to try and find this Iberogast people are talking about too. Anyone know where to get this? Thank you so much!!!
sorry comment was meant for Bonnie
There are ways to prevent the pain and nausea without pharmaceuticals that only mask the symptoms, I have been drinking Glucerna to stop spikes in my sugar, also I had c-diff and it caused me to have gastro paresis. I take two tablespoons of coconut oil daily, I also take Tumeric acid and Fucoidon, or brown sea kelp….My symptoms have greatly improved. Align did not work for me so I now take probiotic gold, and liquid vitamins are truly the best…I take a tablespoon of liquid vitamins daily, I have slowly added cooked greens to my soft food diet and it is very beneficial. I was put on reglan, but it did not help me, so I looked for alternatives…I hope this helps someone. Doctors are at a loss on how to truly treat gastro paresis, and nutritionists do not help….
DE Bartley — Glucerna, with all it’s omega six and artificial ingredients and flavors would probably cancel out all the other things you’re taking.
I was diagnosed with GP in March 2015. I use Betaine HCL capsules twice daily prior to lunch and dinner. I can’t live without Iberogast. I found Bigelow lemon ginger tea with probiotics. I put the Iberogast drops in that tea. I sip on that about twice daily, usually after lunch and dinner. I do this as well as taking a chewable daily vitamin and a probiotic every morning. I still struggle but I find these things help. I didn’t realize B12 could help. I am going to try to incorporate that.
Hi, everyone. I just discovered you all today while searching to see what recent discoveries have been in the works for GP. I hope this doesn’t discourage anyone, but I’ve had gastroparesis since I was a young child. They first diagnosed it as IBS (childhood through young adulthood), then a “motility dysfunction,” then gastroparesis, which seems to be the popular name now. (I call it many names: Thief, Despair, Walking Death, Carcass with a Living Spirit Inside, and other names I can’t publish here–well, you get the drift!!) And like many of you, I’ve been on the medical merry-go-round my entire life (I’m in my sixties now). And just to complicate things, I also have chronic migraine and side effects from the DES that my mother was injected with throughout her pregnancy with me. After my second pregnancy (in spite of our odds of having children, which was zero, we had two, but they, too, struggle with health issues), I was also left with HBP, which has never resolved. I have adrenal and pituitary adenomas that the drs. don’t believe are adding to the rest of my symptoms and degenerative arthritis in my lower spine now. I kinda feel like Danny DeVito in “Twins”!! In spite of all this, by the grace of God and sheer stubbornness, I’ve managed to work most of my life so far (though it’s getting more difficult now) and even be creative and social at times. At this point, I’m living on liquids again, as I’ve done off and on my whole life. And I’m struggling to maintain some semblance of hope and faith in the midst of it all. The physical stuff is hard enough, but to me, the spiritual toll is the worst. My husband and I have been married for nearly 35 years and I’m sad that we’re still having to accommodate this body of mine. As I was lying on the bathroom floor last night (I was too weak to get out of the shower, and my husband had to help me to the floor where I rested until I could climb back in and rinse off), I cried in frustration because I knew going to the doctor wasn’t going to help. And I couldn’t fix myself. What was I to do? I’ve already had all the tests (even at Mayo in my 30s) and have had the diagnosis confirmed and reconfirmed over the years. I’ve tried orthodox and unorthodox treatments by the busload. I’ve encountered one or two good doctors and a truckload of ignorant, uncompassionate ones who added to my suffering (I experienced severe muscle spasms as a side effect from Reglan, that a neurologist misdiagnosed as stress; when I later told a different doctor about it, he told me that I was fortunate that the spasms weren’t permanent as they can be for some). But here I am, reading the comments in this community from all of you, because hope springs eternal. And this is what I want to contribute today: Thank you for sharing what has worked for you. There are actually a few things I haven’t tried yet that I will. For those of you who have been living on liquids for months, I get it! (I told my husband the other day that food commercials are like porn to me now. I’ve never been fascinated by food shows before, but now I find myself drawn to them like a magnet, especially if they’re British. It’s amazing how much of our social lives revolve around food, isn’t it?) I know the sacrifice you’re making, even though it’s not of your own choosing. I’m walking right beside you. If we don’t give up, we win!! Somehow, by the grace of God and by your courage, your love, and your not giving up, you’ll be the hero/heroine of your own story. Thank you all for helping me remember that I’m not alone in this lifelong struggle, but I’m in a community of fellow sufferers who are helping each other get down the road. And a special thanks to you, Gabriel–a true angel…
cAN gp CAUSE TERRIBLE HALLITOSIS? hOW CAN i GET RID OF THAT? aPPARENTLY IT HAS BEEN AWFull for others for years. Can a pill sweeten the stomach? Thanks for all the info!!
I was diagnosed with gastroparesis last December. I think it started actually around October. Went to Dr. they diagnosed me with it & just said “eat smaller meals more frequently.” I lost weight (like 15lb) in couple months & just started to feel better & was able to eat more when this whole shut down started & some family problems came up that caused my nerves to get all twisted in knots & next thing I know, I’m back with having the full feeling after just eating a little bit & all the other symtoms that I had last fall. Lost even MORE weight (I’ve lost total about 25b!) I try eating smaller meals more frequently and tried drinking the Boost drinks but they don’t agree with me.
I have learned more things about what to try on this site than I have from my doctor!
I am going to try the Vitamin B see if that will help me.
I got Gastroparesis In July right after getting a mild case of Covid. I have has the covid shots and the booster. I have asked my doctor if I got Gastroparesis from Covid but I’m sure it’s from that because it is a virus. I’m glad to know that someone was able to get over this illness. I know I’m getting better because when it first started I was having bloating, nausea and stomach pain. I still can not eat a meal just soup, chicken salad & tuna salad with crackers. I no longer get bloated or have nausea just stomach pain sometimes. I’m taking Benthanechol, but it makes me feel more pain. I want to try B12 and maybe probiotics see if I get better. Thanks for everyone’s help
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